Resources in New Zealand
Sweet Louise offers an online forum and journal to all New Zealand women with secondary breast cancer, as well as restorative and practical free services in the areas where the organisation is operating.
At present Sweet Louise is operating in Auckland, Northland, Palmerston North, Wellington and Christchurch. Watch the website, as the organisation is planning to expand its services nationally.
New Zealand Breast Cancer Foundation
NZBCF provides information for those diagnosed with secondary breast cancer. They have produced a webinar for those with secondary breast cancer – Living a normal(ish) life with advanced breast cancer, and also provide a great list of world wide cancer sites.
BCAC – Metavivors
Metavivors is an online Facebook Community for New Zealanders with secondary breast cancer to share their experiences and to advocate for better care and treatment for those with advanced breast cancer.
Cancer Society of New Zealand
The Cancer Society have an information service, support and/or counselling services, accommodation assistance if undergoing treatment out-of-area, and other practical services.
Resources on line
As new treatments are developing all the time, it is recommended that the specialist in charge of your treatment be the main source of information about the treatments you are offered, as books and websites can go out of date quickly.
Advanced BC is a site founded by Musa Mayer, survivor and author, with wide-ranging information.
Brain Mets BC is a sister site to the above.
Advanced Breast Cancer is the Queensland website of a support group for women with secondary breast cancer.
If Cancer Comes Back
Advanced Breast Cancer Community has a helpful list of linked websites
Books and DVDs
The DVD, You’re Not Alone, is about the experiences of 3 women living with secondary breast cancer. They talk about what it was like when they were first diagnosed, and their journey into uncharted territory as they learned to cope, with the support of their family friends and other women in a professionally led support group.
This film was produced by the Advanced Breast Cancer Group (Brisbane) in collaboration with the Griffith Film School, Griffith University and funded by Queensland Health. It was developed as a resource for women diagnosed with secondary breast cancer, their partners and families and for health professionals involved in their care.
Feedback on this DVD would be welcomed contact us
Advanced Breast Cancer: A Guide to Living with Metastatic Disease 2nd edition Author: Musa Mayer, Publisher: O’Reilly and Associates Inc, 1998. Try your library for this book or Amazon.com. Although written in 1998, it remains one of the best books available. Readers should note that treatments have changed since the book was written. Musa has written another book called Holding Tight, Letting Go; A guide to living with metastatic disease. More information here
Armed with Chocolate Frogs Living with Advanced Breast Cancer
Kate Carey Productions, Vic, Australia 2006 AU $24.95 Read review here
Dr. Susan Loves Breast Book
Author: Love, Susan M, Lindsey, Karen, Da Capo, Cambridge, Mass., 2005
Often regarded as the breast cancer Bible, this book informs and empowers.
Life, Happiness & Cancer: Survive with Action and Attitude!
Author: Phil Kerslake. Latest print version available directly from the author from $20 inc.
Author: Margaret Foster, Random House 2009
Read review here
The Pink Party
Author: Jane Bissell, Klarer Lasserre Books 2007
Read review here
Our thanks to all those who have contributed to this page.
BCN acknowledges with thanks the following sources of information: