About Us

Kia ora, Welcome to Breast Cancer Network NZ

First and foremost BCN is a volunteer group welcoming all New Zealanders who are affected by breast cancer and supporters. It's our goal, using our website, magazine, projects and resources, to provide information about many aspects of breast cancer, to ask some hard questions and to put people 'in touch'. With our links to other groups and information sources, we can help you find the services you need if you or someone close to you is diagnosed with breast cancer.

We offer a voice for those affected by breast cancer in our bi-monthly magazine Upfront U Kaiora, so that women can share personal views and concerns. Your contributions such as letters, ideas, reviews and stories are welcomed. The magazine always has interesting articles and is keenly read by BCN members, breast cancer groups and health professionals. Our mission includes working towards prevention of breast cancer- risk reduction is an important focus for BCN.

Other than a part-time administrator, the editor and the designer of Upfront U Kaiora magazine, the group is managed by volunteers, most of whom are breast cancer survivors – women helping women on a voluntary basis. (But men can join up too!) Members can get involved in activities – please contact us if you want to help, we do need you.

Breast Cancer Network (NZ) Inc is an incorporated society and registered charity, and is GST registered.

In a nutshell-
WHO WE ARE
We are a voluntary breast cancer group
We focus on sharing information and promoting risk reduction
We link women with groups and services
We promote research into the causes of breast cancer and promote primary prevention
We promote high quality and equitable treatment and services for those affected by breast cancer in New Zealand
We are funded by grants, sponsorship and donations

WHO WE ARE NOT
We are not a fund-raising charity
We are not health professionals
We do not run our own support groups
Interested? Read on to find out more.

What we do

At present we focus our efforts on recommendations from the BCN 1st National Breast Cancer Conference. BCN has worked alone on some recommendations, and with related cancer groups for implementation of some recommendations through their services. In this way, more goals can be achieved, and connections between groups are strengthened. See Projects

We continue our work on the Stop Cancer Where it Starts project, which aims to inform and empower women to make lifestyle changes that influence breast cancer risk, and secondly to promote the reduction of New Zealanders’ exposure to toxic and hormone-disrupting chemicals in the environment. See Stop Cancer

History

By Barbara Mason
The Breast Cancer Support Society was established in Auckland in the mid 1960's initially to ensure women left hospital with a prosthesis. In the late 1980's Barbara Holt, founder of Breast Cancer Network, was a committee member with this group. She first met co-founder Wendy Steenstra-Bloomfield and other founding members of Breast Cancer Network at the "Opening Up" seminars organised by Betsy Marshall of the Cancer Society. However they felt the need to form another group and wrote to 20 women who were survivors, supporters and health professionals. They drew ideas for the new national group from San Francisco's 'Breast Cancer Action.'

The first newsletter was written by Barbara Holt and produced in December 1993. Barbara Holt did almost everything - she was Chairperson, edited newsletters, networked, lobbied and handled the administration. She brought Nancy Evans from USA to New Zealand as a speaker, and promoted the environmental breast cancer movie, Rachel's Daughters. Since 1998 we have employed a number part time administrators whose efforts have kept the group functioning well - Dianne Speed, Nicola Timms, Sue Heiplik, Jennifer Woodroofe, Deirdre Parr and Heather Stonestreet.

Originally called Breast Cancer Action Aotearoa NZ Inc, our name was changed to Breast Cancer Network NZ in 1998. This reflected an increasing number of breast cancer networks operating in Australia and Canada, and our view that it is more effective for breast cancer groups to work cooperatively. BCN initially worked towards the establishment of a free national screening programme and considered it a major milestone when BreastScreen Aotearoa was launched in 1998.

From 1999, when Barbara Holt left Auckland to live at Ruakaka, Gillian Woods acted as chairperson and Darien Kerkin was appointed as Treasurer. Gillian became Chairperson from 2002 to 2004. During this time BCN developed a leaflet informing women about BCN and a bookmark with information about breast cancer risk reduction. The introductory issue of Upfront and a new members' pack was instituted, a website was set up and Stop Cancer Where it Starts was launched with the publication of two leaflets about risk reduction.

Working with representatives from the Auckland Breast Cancer Coalition from 2002 to 2003, BCN helped develop a proposal for a Breast Cancer Consumer Representation Programme. Lois Muir agreed to become Breast Cancer Network's patron, providing New Zealand women with a wonderfully positive role model for tackling their breast cancer journey.

To acknowledge the tenth anniversary of BCN in 2003 we made several small grants to breast cancer support groups around NZ, and another to a university research project in which we participated. A Strategic Plan was developed and annual planning days took place. Submissions were sent to parliament. Members attended breast cancer conferences in Canada and in Australia.

In 2004 Barbara Mason was appointed Chairperson and coordinated the work of BCN for 4 years through the very busy period of the First National Conference and the 2006 BCN petition to Parliament. Barbara has worked on building the organisation, gaining new funding sources and establishing strong networks in both the breast cancer and scientific fields. She has also been a tireless worker in the Stop Cancer Where it Starts project.

Working cooperatively with other groups has been achieved by distributing Upfront U Kaiora, participation in two Auckland coalitions, visits to breast cancer groups around the country, a national petition and in 2007, a national conference. We keep in touch with Breast Cancer Network Australia who have kindly supported BCN over several years. During our first 10 years we saw two major New Zealand groups set up and take on the raising of funds and awareness for breast cancer - the NZ Breast Cancer Foundation and the Breast Cancer Research Trust. BCN has seen the rise of specialist breast surgeons and nurses, and specialist breast physicians (whose registration has unfortunately now been stopped) and the Cancer Control Council, all to women's benefit. There have also been new treatments and more positive outcomes.  

Meetings were initially held in Barbara Holt's Auckland home, then in Everill Orr Village where we had our first office, later at the Community House in Pt Chevalier, and from 2001 to mid-2008 we enjoyed free office space provided by Bakers Delight, in Penrose. Now our office is situated in central Grey Lynn.  

A bequest of $10,000 was left to us by a member in the early days, and this was used to keep the organisation going and take on an Editor for the newsletter. The newsletter was called Upfront for the first time in mid-1999. In 2002 a similarly large sum was donated from Homecare when it wound up. We have received grants from COGS since 2000 and Lottery grants since 1995 and have been supported by a number of other generous sponsors.

We have participated in, and made grants to research. We took part in a project called 'A pilot study to investigate the effects of soy milk as compared with dairy milk on disease risk parameters in a small group of New Zealand Women' undertaken by Professor Lynn Ferguson of Auckland University. We made a grant to Ray Simpkin of Device Works (IRL) for his non-ionising radiation imaging of breast tissue.  

In 2007 we organised a very successful New Zealand-wide conference for those who had experienced breast cancer. This grew from the inspiring experience that BCN members enjoyed when they attended a Breast Cancer Network Australia conference in 2004. Dell Gee, Conference Convenor, and Jenny Clark, Treasurer, led the conference team with help from National Committee, supporters and a great team in Rotorua. See Conference reports.

An ongoing project is Stop Cancer Where it Starts which draws attention to breast cancer risk reduction and prevention. We have distributed several thousand life-style leaflets to healthy women over the last 3 years, and presented a petition to Parliament. See Stop Cancer

In November 2005 the Breast Cancer Aotearoa Coalition was established in Auckland. BCN participated in the first initiatives and continues its membership and interest.  

Breast Cancer Network welcomes enquiries and new members. Members are drawn from those who have experienced breast cancer and their families, supporters and health practitioners. Our bimonthly magazine, now called Upfront U Kaiora, offers information and an opportunity to share your thoughts with others. We also offer information from our website and office, promotion of breast cancer prevention and networking with other women.

Lois Muir and Barbara Mason

Barbara Holt

Conference Team